Monday, September 13, 2010

What is it that only God can do?

The email devotion this morning caught my attention because I can answer this one pretty easily. I have prayed for healing for Jake- and while I am not thrilled about the outcome, I know that now is not the time yet for this to be over for us.

Only God can fix the disaster area that is my love life.

I still talk to about a dozen men I used to date, mostly on Facebook, and we have stayed friend after a romance.I think that speaks to the friendship that was a part of the romance, but it has left me perplexed.
I wear my heart on my sleeve and totally stink at hiding what I am feeling.
I am going out for drinks and dinner with someone who has potential, but no spark, because he has potential and I wonder if that makes me a total jerk- I've been counseled that I need to give it some time to see if my feelings change.
I hurt the person I actually like back and he will probably NEVER ask me out. Super.
I seem to be attracting, at least historically, people with negative energy. I've gone back to meditative prayer to adjust that energy - hopeful that this will help! 

So this prayer, I will send to the Heavens:
Dear Lord,
I want to offer a prayer for the partner I haven't found yet.  Please be a balm to his heart because if his lonliness is like mine, it hurts him.  Please reassure him that I am coming and preparing myself to be a good partner when You deem the time to be right. I don't care about his looks, I don't care about his age, I only care that he has a heart for You and loves You above all else.  I would like him to be human, and have frailties, please, a saint might be a little overwhelming to a sinner like me. I do care that he has room in his heart, I do care that he is able to love me without major renovations, I do care that he can take care of himself.  Lord, I'll trust you to take the pain of this longing from me until such time as it is appropriate for me to look again. I love You - and I know You love me back. I felt that so intensely in Adoration last night.
Now if you could manifest that in physical form, that'd be great.
Thanks.

Sunday, September 12, 2010

ePiC FaiLUrE

When my dad was dealing with Lymphoma, he started doing a lot of reading about possible medical, holistic, and dietary influences on the progression of cancers. We have always been proponents of good nutrition and supplementation. About that same time, I had read about Suzanne Somers and her remarkable ordeal with breast cancer - where she allowed the surgery to remove the tumor, but refused to have the subsequent chemotherapy. She used appropriate nutrition, supplementation and bioidentical hormone replacement therapy to make her body healthy.

I have always love her work, so when I found out that she had several books with deal with hormone replacement and aging, I bought them and read through them hungrily . While I am not a proud woman, and I am not afraid to grow older, I need to stay healthy because there are people who depend on me.


So over the years I have seen a couple of good holistic practitioners who have started me on a variety of meds based on my vitamin deficiencies: Tumeric, Vitamin D, Omega 3, CoQ10, Selenium and a multivitamin for good measure. I also added progesterone after my hysterectomy to assure that my hormones were in line- because before that they were not. I think they are working out well because I am rarely sick and I feel really good most all of the time - even if I don't get enough sleep.

I switched compounding pharmacies and in the confusion of calling my prescriptions in, the hormones got switched. About 5 weeks ago, when I met a man who I actually liked AND respected - I started taking estrogen twice a day. So by the third day on this regimen, I have roughly the hormones of a woman in her 7th month of pregnancy. Super. Emotional, crying for no reason, taking everything personally, having trouble sleeping and concentrating. I can totally see it now - of course, hindsight is 20/20.

I was talking with my friend, Mary, on Friday, and she pointed out that I was more emotional than usual- I called the pharmacy and asked about the Rx as it is the only thing I take by prescription. I had missed my Friday night and Saturday doses already- so when I got the message on Sunday morning that it had been just estrogen - I was....well I was upset.

It is very possible that I was at my worst-possible emotional state for the past month- the exact time when I needed to be strong for my family and take care of Jake and when I had the potential to get to know someone who had all the qualities I was looking for.

I read back through my notes to him -and I sounded like an ass - like a 12-year old who was mad about not getting her way and not getting enough attention. Not my best-self at all.

So I sent him a note and apologized - said I had been an ass - and hoped that he would forgive me. I don't know if he will - or if I will ever hear from him again.

That is something I will regret - or maybe think of wistfully as it certainly wasn't an error I made on purpose or with the intention of destructing things.

But I did learn an important lesson - that if something feels off, I should trust my instincts and not just blame the circumstances. I thought all the emotional blathering was a result of worrying about my son - but even though I am not thrilled about the outcome, I knew the entire time that God would watch over us - and He did. That was a poor explanation for my weird emotional state. I need to look deeper and more objectively if I doubt myself again. The lesson I learned is that I need to trust where I have been - and I need to trust myself.

This morning's readings were the story of the Prodigal Son - a do over, so to speak. I resolved in my heart that I am going to stop worrying about being alone - while still praying for my future partner and his well-being - because He is watching over me and He can make things work out in this next do-over even if I can't.

Thursday, September 09, 2010

Season of Goodbye

This has been a week of goodbyes and it is never my favorite thing - even when it is necessary.

I said goodbye to the hope of a life without epilepsy for my son - and have embraced the reality of his future. I'm still a bit sad about this - in so far as I would like a brighter outlook for him.  But, he has a great attitude and a good heart and he should do well regardless of what is put before him.  There is the still, small hope that he might outgrow this when his growth spurt stops - and I am also considering taking him to Medjugorjia- but for now, where we are is where we are.

I said goodbye to our dog, Angus.  He hopped the fence last week when we left for Cleveland and by the time I got to the pound to pick him up ( the kids didn't have any cash to go get him) he had been adopted by another family.  Again, bittersweet because he has hopped this fence and gotten picked up about a dozen times in the past two years. It has become a real stressor for us- dropping whatever we are doing and going off to chase the dog - so ultimately it is probably a blessing - but I loved him and now he's gone.

Lastly, I said goodbye to being the Savior of this whole household.  I am in a bad spot with my older kids that is entirely of my own making, having allowed them to continually stay here without working or being enrolled in school.  I have found myself becoming my father this week.  Honestly, I wish I could be more like him- he didn't take any of my crap and as a result, I have been a hardworker - something that has absolutely saved my rear.  Every morning I am rousting people from their beds - reminding them that they need to get out and go look for work.  Yesterday I even had to confront my daughter about her school work - which is supposed to be self-study now- only she isn't doing it at all. My brother has already found and lost one job - and now has found another one in the 3 months he has been here - I just don't get why the kids are having such a hard time. They have been looking online - during a recession no less - and haven't found anything.  Really? I'm almost shocked.  They have to get moving and get on with their lives. 

There is a deadline - by the end of the month and going forward, they all have to pay me rent to stay here - well everyone over 18 does. I can't keep paying for everything except cigarettes any longer - Jake and I should be living like Kings on the income I make- but when you add in all the other people who need gas and groceries and car insurance and cell phones - the money gets stretched a lot tighter.  And that isn't fair to Jake.

My biggest fear in this season of goodbyes is that I will have to actually kick out my own kids.  But if I am truly Dave Loner's daughter - that is exactly what I will have to do so that they can learn the consequence of their actions - and it is not a nice consequence.

The nice thing about goodbyes is that they are a part of the neverending cycle of life.  This is one of my favorite things about God- something the Navajo understand so very well. Our lives and what we should expect play out in the natural world around us and give us a clear picture of how things work . We have summer where everything is lush and growing - then things start to cool and die off and we have to say goodbye.  Then the winter comes and we rest and rejuvenate and grow fat and happy, just in time for spring and saying hello all over again.

Tuesday, September 07, 2010

Why MENSA isn't doing you any favors...

I like smart people just as much as the next guy, but sometimes, they really frost me.

Growing up, my folks put a lot of emphasis on our education, but more importantly on humility.
It is great that Davey and I are intelligent - great that I did well in school, but after I stopped receiving report cards, who in the heck cares that I aced my SATs?  Exactly - no one.

In all honesty, I don't use big words on purpose - it can muddy the water and cloud the meaning of the message.

When I am with physicians, I often find myself speaking more simply and I can see that my lack of clinical language can impact the way they hear my message.  Eh, it happens and over time the realize that if my primary function is to explain things in layman's terms, that layman's terms will be my primary language.
Using lots of thesaurus-based words doesn't mean you are intelligent - and even if it does, what good is a high IQ unless you put that brain-power to use for the good of others?  I reminds me of that passage: if I can speak with the tongue of angels, but have not love, I am a clanging gong...

Does my IQ entitle me to more income?
Does it make my opinion carry more weight or validity?
Does my IQ mean that I know more than other people?
Does it mean that I am somehow more "right" than everyone else?

Um....no.

Measurement of IQ has been heatedly debated of late because it measures only one type of intelligence.  This is borne out in the number of people we know who are book-smart, but couldn't find their way out of a cardboard box outside the classroom.  Or the people who are great orators, but who cannot put those principles into practice because their emotional intelligence doesn't match their intellectual intelligence.

Everyone has their own strengths, and focusing on how brilliant you are can very easily lead to begininning to believe your own accolades.  It is a pride-fall in the making.

Be thankful for your gifts, utilize them for the betterment of mankind, but for Heaven's Sake, don't think that because you paid your dues to MENSA that you are the only person in your circle of friends who has any sense.

Monday, September 06, 2010

Knowing

I know things.  That sounds weird, but I have come to accept it.

When we talk about the gifts of the Holy Spirit, we include knowledge and right judgement - which, when aided by the Holy Spirit, become otherworldly gifts which allow us to navigate our world more easily - or at least more informed.

On Monday, I had the overwhelming feeling that I should get Nicole's things out of her apartment.  I cannot say exactly where this thought came from, because honestly, she is an adult and it is her responsibility.  I was just innundated with this thought that we needed to get her things out before she was in trouble with the police.  This is an urge which is NOT based on any information I had that suggested this scenario to be true. My brother gave me some flack about it - and said I was being silly.  We moved her stuff Monday night anyway.

Tuesday when I got home, I was told that her boyfriend had called her to say that the police had been to his house and that the apartment was a "place of interest" because of the number of kids hanging around there and that they thought maybe either he or she were selling drugs.  About an hour after that call, came the call that the police had come and placed all of her remaining belongings out in the street - and that anything of value had already been taken.   Spooky, I know.

I knew the night my dad passed away that it was time.  I had a conversation with my mom  while she was dropping off her car at the shop about how we needed to let him go and that our desire to keep him here was keeping him from passing over. We agreed that it was time and that he was in pain and deserved not to suffer anymore.   Not 30 minutes after this conversation, she called me as she arrived back at the lake house to find him taking his last breath.

I knew that the threat was real when we picked up and moved to Georgia.  There had been dozens of threats in the preceding months, but this time, when the threat was made, there was such a cold calculated feel to it, that I knew it was true.  You may remember that 6 months later I discovered that there had been the rental of a backhoe and 500 pounds of lime meant to dispose of us - completely lining up with what I had "known" would happen..   I took a lot of heat for that decision because I didn't have proof- but 6 months later, the proof showed up.

I've known things when I meet someone - like when I met Lora, I knew right away that we would be like sisters.  I knew the same thing when I met my friend Mary- and it has come to pass.  I've met people through work and been able to sort the wheat from the chaff pretty quickly.   When I met Dan and Justin both, I knew something was off - but I ignored it because I wanted proof.  Mistake.

I have met a couple of people, that I knew would be close to me, but that I wouldn't be able to keep.  That is a tough one, to go through with a friendship or romance knowing that you will lose them.  This isn't a fatalistic view of things, but rather an understanding of what is to come. I chose freely to love in spite of what I knew would be a negative outcome.  ( I think you can learn from each person you are befriended by and that knowledge is worth the subsequent heartbreak)

Sometimes, there is a man involved, like there is at present.  I know he is scared to let someone see who he really is -but he really wants to, deep down, be known and loved.  He is inherently a good man, and I have said as much- but he doesn't believe it. He doesn't yet believe that he deserves to be loved.  I understand that position, I have been there myself.  I know that fear is guiding some of his decision making right now- and that being who I really am and being honest is what is called for.

I had fireworks- ME - I actually had fireworks. I have kissed a hundred frogs since I was 13- and had some good kisses in return - but this tops anything I had ever experienced - the chemistry was off the charts. That is rare and was meant to get my attention - and it has.   It is risky  - mostly because it could go either way.  Either he will crush me, reject me, ignore me and break my heart - or he will be the love I have been waiting for all these years.   Should he choose to do the former, he is in direct conflict with what I have been shown,  but he has to choose, he has to lead, he has to be the man in this story.  If I take that role, the whole thing will be ruined.

My friend called to tell me about a suspicion she had about her spiritual battle - and immediately I knew that it was indeed as she perceived- I had goosebumps all up my arms and legs which confirmed the creepy suspicion she had verbalized.

I have the routine inklings - like when I know I need to throw a kind of infusion sets or a copy of a study that I never carry in my bag - only to be asked for them later in the day.  I have moments where I ignore this and don't pack something, or don't call someone, only to find that if I had, things would be easier on me.

So what are you to do about such a problem with intuition - or knowing  - or whatever you want to call it?  I have tried to ignore it - and that just comes back to bite me.  I am now learning to embrace it an handle it like a gift from the Holy Spirit to help with navigation - like a situational GPS. It sounds weird, doesn't it?  Or maybe it is something we all posess and just need to learn to harness.  I don't know the answer, I only know that I needed to share this tonight.

Trust and Peyton Manning

I love Peyton Manning for a number of reasons including his humility and candor.  He is accomplished and has been known to tell people that he and the offensive coordinator are the ones calling the plays - not the other members of the team.  And given his success, he has a right to trust his own judgement.   He told the following story starting at about the 5:30 mark on this video:
http://www.youtube.com/watch?v=6QZow3cuCOU

I've heard it in another interview as well, so this is paraphrased:

During the regular season, a  second-year back up tight end named Brian Fletcher got to rotate in the lineup.  The first time Peyton threw him a pass, they had a rhythm and an energy like guys who had been playing together for years. Brian really likes to give his ideas in the huddle for a number of offensive plays, mostly featuring him, so many of these suggestions go unnoticed.  Peyton fondly calls him "The Suggestion Box". After their first game together, several games went by and he never threw to him again for one reason or another. 

They still saw each other in practice, but Peyton's primary target was back to being Marvin.  Still on the same team and with the same goal, but not working together at each practice.

During the 4th quarter of the  AFC Championship game against rival New England Patriots,  Brian once again got his chance.  Brian came to the huddle and again suggested that Peyton put his faith in him and run a play that featured him receiving the ball.  Peyton described as vibrating with all-over- the-place exuberance.  Usually when Brian suggested such a play, Peyton said he was resistant, but this one time, he decided to try something different and use the suggestion.   

The play was run, and the pass was incomplete. Fletcher didn't hold on to it despite being hit right in the numbers, and a down was wasted, and only he was to blame.

There had been a mistake - and it was serious enough that it could cost them the game.

To his credit, Fletcher comes back to the huddle and asked Peyton to run a corner route and trust him to catch it this time.  Peyton told him that it took a lot of nerve to ask him to risk the game so that one person could prove himself.  Fletcher asked him to do it anyway. Peyton, despite having been disappointed by this person just moments before - took a step back and thought about the suggestion - and did what Fletcher asked him to do.

The rest of the story is predictable, Peyton throws, Fletcher catches it for a 17-yard gain and 6 plays later Joseph Addai runs it in for a touchdown, winning the game ( I told you it was a Peyton story, of course they won).

Peyton said later, that if he wouldn't have said "yes" to Fletcher and believed in him, even though he had failed at the very same task just minutes before, they might have lost the game. Having faith that both of them were after the same result enabled him to trust the young receiver and complete his mission.

Penalty Box

My girl Jeanna loves hockey.  Every year as the season grows closer, I see more and more notes about the forthcoming season.  When we were younger, we would go to the Indianapolis Ice games, waiting in the hallway afterwards for a glimpse of the young warriors on their way out of the rink.  Sometimes they would do autographs afterwards and people would would stand for an hour to get a puck signed.   I loved waiting in the hallway because all of the men were taller than me - even the short ones - because of those ice skates.  It was the only place I was not cognizant of my height differential -and that was a beautiful thing.

Hockey can be a rough sport, but the thing I love the best is the penalty box. It operates under the concept of forgiveness, mercy and reparation.  YOu behave badly, you go into the box and pay your time, you are released back onto the ice and restored to your former position more often than not.

There are no comments from the announcers about how you have done this a million times before.  No one listing hte littany of offences that have gotten you to the penalty box in previous games. And once the penalty is served, no one comments on how much of the game you spent there instead of scoring with your teammates.

Oh that life had such a penalty box, where you could go and pay off your time for your  minor infractions  - those not resulting in death - like high sticking and icing.

It would be so good if we could assume that people were doing the best they can and allow them to make a mistake and then get back in the game without apologizing for the same error time and time again.

Michael Finnegan

Do you remember the song about Michael Finnegan - he had whiskers on his chin again??

The chorus always said: Poor Old Michael Finnegan. Begin Again!

While I cannot take credit for this piece of literary genius, I certainly get the sentiment.  The same thing keeps happening over and over again - and you have to begin again over and over again. A bit monotonous, really.

Beginning Plan B all over again.  This includes training the seizure dog to get Jake more independence, applying for Disability and Medicare, joining the local epilepsy foundatoin, coaching for GED testing in November and most importantly, trimming the dead wood from my life so that I can get focused on Jake and getting his life launched in the right direction.

New meds were started on Thursday afternoon- and despite missing a dose this morning and an erratic sleep schedule, there have been no seizures.  Miracle of miracles.  This medication just might do the trick.  Ask me how I like it 6 weeks from now.

Again this weekend I talked to the adults in my household about getting gainefully employed.  This was followed by my promise to have EVERYONE up and moving before 9am and with the admonition that by the end of the month, I needed fiscal responsibility.

I need to get some things listed on Craigslist to get more positive cash flow - and tomorrow, before heading to the pool for sun and fellowship, I have to spray the yard for fleas again. 

Tuesday I will speak with the lady at our new church and help to coordinate an education program for people with chronic illnesses as a part of the health ministry. Looking forward to doing this in a local setting with the same people I see in the grocery store.

We have resolved the house cleaning issue satisfactorily - so the woman with the full-time job does not do all the housework as well - much better.

And finally, I concluded this week that ever since I decided in 2000 that I could raise kids and have a romantic life, things have gone awry.    I have been praying for God to bring me a man who loves Him and who has a good spirit and a good heart. Haven't gotten a man like that who loves me back - though I know it is possible - just had a couple like that who have left just like everyone else.   I am not feeling sorry for myself, only wistful for the longing of my heart: to share my overflowing heart with someone who won't cheat on me - won't lie to me about the important stuff - won't be afraid of accepting love in return.

And so, this last item on my list, is to drop out of the miasma of dating and thinking about love- and drop back into just being someone's mama.  Begin again the path of focusing on my calling. After all, that is what I am really good at anyway.

Thursday, September 02, 2010

Hope Takes A Holiday

At 11am this morning, the neurosurgery team came into the room and discussed the results of the video EEG, the psychological testing, and the PET scans.  The doctor, who is the chief of staff of the top Epilepsy Center in the nation, told me that the results were conclusive and that Jake had generalized seizures.  This means that instead of having just one place in the brain that causes the seizures, there are many places.  This is not good news -unless you count having a surgery that doesn't work, good news.

Hope walked out the door when the staff did-
My heart is just broken- in a way that I cannot even describe-
More painful even than when Dad passed - because there was always the knowledge that the cancer would eventually take him- but this....this just hurts everything.
I am worried that I won't be able to get the tears to stop before he wakes back up- Jake has had some Ativan to help him sleep and relax after the last seizure - so I have a little time.

I can hear my dad running through the back of my mind: you don't have the luxury of falling apart, you have a family to take care of.  And I know that is true.

As I am typing this, the Nurse Practitioner came back in to check on me - apparently I am pretty easy to read.   She has his medicine ready - and they are going with a new combination based on what we saw.    I know, that is a good thing - I know they are doing what is best for him - and there is a glimmer of hope that it will give him the control that he once had.  Oddly, all I can think about is the number of people with Diabetes that I have had the same conversation with: hang on, don't lose hope, something else may work.  My head knows this is true, too- just my heart isn't buying it yet. God bless her, she is a kind soul and had a tough job this morning because she knew it wasn't the outcome I was hoping for.

There is that word again: hope
I know the plans I have for you, plans to give you hope and a future....
I allowed myself to hope in a future where Jake would be independent - where I could be independent.
I had thoughts about a life different from the one I am leading.

And as I type this, I realize that there have been some good things about today as well.  People have responded so positively to Jake - they have been so kind - and he has discovered that he is not at all alone in this.
I have met some new friends who also have kids with epilepsy.

Jake will get to keep his hair

I will go back to my previous plan which is to live in a way that Jake will be supported  - and to keep trying medications and doctors until we get it right and he gets his life back.

Oh, don't misunderstand me - I am pissed off at hope right now - thought about being mad at God, but logically, if I respect Him enough to be mad at Him, I must actually believe in Him- so being mad isn't going to help at all.

So for today, hope is on a holiday - don't ask me to believe in anything - I need a little time to recover.

Wednesday, September 01, 2010

Sur-reality

I have decided, in my sleep-deprived state- that this whole thing is rather surreal.  I have spent nearly every day of the past year trying to make sure the medication was taken on time, that the diet was sound, and that Jake got enough sleep. I have worried about these details to the point of making these issues the top priority in my life - and rightly so as he is my son and it is my responsibility.

Today, I felt as though I was betraying some ancient secret that would bring about the end of the world, as I explained to our Nurse Practitioner, Molly, what things would trigger Jake's seizures.  I just listed them off - and then felt like I had opened Pandora's Box by even suggesting that we allowed these triggers in his life to induce the very thing I have been trying desperately to prevent!

See, surreal.  I am inviting the same seizures that I have been blocking out for months now - like those people with Stockholm Syndrome who go from fearing their captors to actively entering into relationship with them.  And I feel a little dishonest about it.

Perhaps it is my lack of ability to embrace them - to welcome them warmly - that causes them to elude us.  We have withheld medication, played the game that required intense concentration, sat too close to the screen on my computer while a movie played and even stayed up until after midnight as lures for the seizure to show itself. But it remains elusive, like a big cat who knows he faces extinction and keeps hidden in the bush.

Jake is sleeping now - thank God because it is well after midnight. I am sure that tomorrow will bring the seizures to us so that this very accomplished staff can review the information and give us insight into how we can give him his life back.  For now, though, I will try to drift off to sleep like I did when he was a baby: listening for any sign of trouble while trying to recuperate for what tomorrow will bring.